Amazing Grace recorded to the sound of Bella's heartbeat
Thank you Peyton Manning Children's Hospital!
To provide support to families and kids battling congenital heart defects and ECMO at Peyton Manning Children's Hospital.
The diagnosis and journey that comes with a congenital heart defect will trigger a variety of emotions and a multitude of questions, yet may offer only a few definitive answers. It can take a structured and organized family and flip their world upside down into disarray and daily uncertainty. It has the ability to turn joyous and contagious smiles into uncontrollable and endless tears. It has the capacity to knock down a strong and confident adult into what feels like an extremely vulnerable and helpless child.
But most of all, it has the power to open your eyes and educate you on the widespread impact that congenital heart defects have on families. It may seem like a lonely journey, but it is important for us to let those families know that they are not alone!
With our ANGEL by our side,
WE WILL MAKE A DIFFERENCE!
8/19/15 - 8/26/15
Board of Directors:
President - Jason Bobay
Secretary - Laura Bobay
Treasurer - Donald Bobay
1.) Hoffman JL, Kaplan S. The incidence of congenital heart disease. J Am Coll Cardiol. 2002;39(12):1890-1900.
2.) Reller MD, Strickland MJ, Riehle-Colarusso T, Mahle WT, Correa A. Prevalence of congenital heart defects in Atlanta, 1998-2005. J Pediatr. 2008;153:807-13.
3.) Pediatrics. 2013 May;131(5):e1502-8. doi: 10.1542/peds.2012-3435. Epub 2013 Apr 22.
4.) J Pediatr Health Care. 2010 Sep-Oct;24(5):318-25. doi: 10.1016/j.pedhc.2009.09.002. Epub 2010 Jan 6.
5.) van der Linde D, Konings EE, Slager MA, Witsenburg M, Helbing WA, Takkenberg JJ, et al. Birth prevalence of congenital heart disease worldwide: a systematic review and meta-analysis. J Am Coll Cardiol 2011;58:2241–2247.
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A 501(c)(3) organization (EIN # 47-5628753)